1st Louisville CBD & PSP Support Group Meeting a Success

Thanks to the strong turnout and enthusiasm of the Louisville PSP and CBD Communities the first meeting of the Louisville CBD Support Group was a great success. This first meeting was all about getting to know each other and charting the course for future meetings, and that's precisely what we did. After a brief overview of the foundation of the Center of Excellence in CBD over snacks and softdrinks, we moved on to a lively discussion of what patients and caregivers would be interested in seeing in future meetings.

While planning is still underway, the following topics will be covered in upcoming 2010 meetings:

New & Upcoming Drug Trials
New Therapies
General Overviews of PSP and CBD (Probably both covered together)
Timelines of disease progression and how to plan for the future
Transportation Concerns
Environmental Planning (things to have in or at your home)
Meeting respite needs
Adaptive Devices for CBD & PSP

If you would like to suggest a speaker, topic, or an article you think would be good to share, please email them to me at tsbrya01@louisville.edu. I look forward to hearing from everyone!

Sincerely,
Todd

CBD Newsletter Available

The inaugural issue of the Center of CBD's CBD Newsletter is available now from http://www.litvanfoundation.com/.  This quarter's newsletter contain's information on our benefactor, Abe Pollin who passed away in late 2009 at the age of 85, the 1st International CBD Investigators Meeting, Stress and CBD, as well as devices for fall prevention.  Please take a look!

Inaugural CBD & PSP Support Group Meeting!

The Center of Excellence in Corticobasal Degeneration and Related Disorders at the University of Louisville will hold the first meeting of its CBD & PSP Support Group on Wednesday, March 24th from 1:00pm to 2:30pm in the 15th floor Board Room of the Frazier Rehab Institute (220 Abraham Flexner Way, Louisville, KY 40202).


Free valet parking is available for anyone with a handicapped tag and self-parking can be validated at the meeting (please bring your parking ticket). Light snacks and drinks will be provided.

This first meeting will be an informal “getting to know each other” session where we will discuss upcoming plans for our support group as well as decide on areas of interest to the local PSP/CBD community. This initial meeting is for both patients and caregivers of patients with CBD, PSP, or other atypical parkinsonian disorders.

For more information, please contact Todd Bryan, CBD Center Program Coordinator at (877) COE-CBD1 or via email at tsbrya01@louisville.edu.

Welcome!

You have found the blog of the Louisville CBD Support group, a function of the Center of Excellence in Corticobasal Degeneration.

Here we will be posting information on future Louisville CBD Support Group meetings and events as well as highlights of previous events. Check back often for access to the most recent news.